I have not updated in a while. It has been hard to know what to write. Zoralei's RND has kind of remained at a level 5/6 on the pain scale. Mostly, the issue is whether she is exercising enough. She has made it a goal to join a sport next semester and has started to run in order to train for it. She has only gone out a couple of times, because she got mono over Christmas break and so now she is not feeling better. However, because of the hospital program, she has pushed past it more than most kids her age, still running a couple of times a week, throwing a surprise party for a friend, doing family things with us. She has needed to rest in between. When the doctor asked her whether she has been unable to do anything, her response was, "I have RND and that is all about pushing past limits." There have been some great benefits of the program at the hospital.
I have been concerned that we are not progressing. Zoralei said it is because she is good at strength training, but not good at cardio and since RND is a lactose buildup, the cardio is vital to getting it to move properly in her body. She is getting more cardio than before, but it is not enough to really make progress.
There were no strange pain episodes during driver's education. I am glad some fears are unrealized:)
Zoralei's endometriosis is growing back and so getting her RND to be pain free is really important because it compounds the endometriosis episodes. Luckily, the placement of pain is different and she can tell which one is which, another unrealized fear (Yeah!), but her nerve endings want to magnify the endometriosis to the point of being unable to function. That has been challenging during her monthly cycle.
She even has a awfully painful throat with the mono. It is like her life is one continual round of physical pain after another. I just truly feel for my daughter. But somehow we have to got to get the RND down to nothing on the pain scale, but it continues to be a challenge outside of the hospital treatment.
