Zoralei is still suffering the effects of the concussion. The misdiagnosis and subsequent mistreatment really delayed the healing. It will be a month tomorrow of sharp headaches, sensitivity to sound and light, nausea, and dizziness. She is so OVER being sick and in pain all the time. It has really begun to affect her moods. She is starting to want to withdraw a bit, avoid hanging with people. Understandably, some of that is because her head hurts and too much of a crowd or tv stimulus hurts her worse, but some of it a sense of discouragement. To always be in pain is discouraging.
Zoralei has been asking a series of questions related to this, similar to: "Mom, what if I will always have the effects of this concussion? My RND makes me more sensitive to pain and what if it does not let me fully recover from the headaches and pain sensitivity? What if I find that those nerves affected by the concussion remain super sensitive? What if it never goes away? If the doctors say that I cannot play lacrosse if I have any symptoms, will I ever be able to play again?"
I really hope not was all I could reply. I know the doctors at the hospital said we could tell the difference between RND induced pain and non-RND pain, but the line is a fuzzy gray and one jump on her arm by her brother resulted in permanent pain, resulted in her RND. What if one ball hit to her helmeted head makes a new area of her body subject to the RND? It is the same question I am asking myself. I understand why she is starting to feel discouraged, to feel like a walking time bomb of pain. Is there anything else to experience besides pain for my daughter? As a mother, watching her suffer and every thing that might be minor to someone else ends up larger than life for her, is heartbreaking, and tiring too. I just want her to know what it means to be able to enjoy just being.
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